Letter of Appreciation ... Doing Amazingly Well

With all the media concerns regarding Gilenya (Fingolimod), it is nice to see a success story (individual results vary):

AMAZING NOTE FROM FORMER RESEARCH "SUBJECT" (i.e. PERSON with MS)

Hi Dr. Kantor,

I have been meaning to write you for a while and let you know what I am up to now.

I got into the Gilenya Guide Network and travel as a patient guide on behalf of Novartis and talk to people about my experience.

Basically, my "story" recounts how I had reached the end of my rope with other MS therapies and came to you as a new patient and got into the TRANSFORMS trial at your urging, and ends with what it has meant to me. The more I deliver this talk, it has become very clear to me just how HUGE a role you have played in the course of my MS, and thus my life.

If it hadn't been for you traveling around giving your MS Town Hall meetings, encouraging MSers with your self-advocacy message, and presenting us with all of the hope that research held for the future of MS, I may well have given up. I look back on that time as a period in my life that was lacking hope and full of despair.

So, from the bottom of my heart, I'd like to thank you for all that you have done and continue to do. Not just for me, but for all MS patients. Without your encouragement and dedication to education and research, I'm not sure where I would be today. I just know I owe the fact that I have not relapsed since April 07 to you.

I don't know if you have considered it or not, but I think you'd be an awesome presenter for the Gilenya Guide Network. These meetings always have a neurologist who presents an FDA approved slideshow about Gilenya and then answers audience questions afterward. Your energetic and charismatic speaking style would really impact the audience, I'm sure.

Also, I am interested in becoming more of an MS activist. Novartis trained the patient speakers and since I attended that training and found my "voice" I no longer have such a terrible fear of public speaking and feel that I could go to Tallahassee or Washington even, and testify as an MS patient in whatever capacity is needed to either bring about changes in the law or increase funding for research. If you have any need for my assistance, please let me know. I'd even do webinars. Anything to raise awareness and/or effect change.

... Thank you for your update

- Dr. Daniel Kantor, MD

Medical Director

Neurologique

info@neurologique.org

www.neurologique.org